
What We Mean when We Say … An Approach to Health Care and Welfare for Persons with Rare Diseases
Publisher: Institute for Philosophy and Social Theory, University of Belgrade Published: 2023 ISBN: 978-86-82324-36-2 Pages: 16 Co-Publisher: Institute for Democratic Engagement Southeast Europe, Belgrade Edition: Square Author(s)/Editors: Marko Milenković, Isidora Jarić, Miloš Milenković Share: More Details Description:
This text examines access to health care for patients suffering from rare diseases in Serbia, especially those living outside major urban centers. The focus of research is the introduction of a new entity in the healthcare system – The Center for Rare Diseases. Based on the analysis of the legal and strategic framework, as well as qualitative research, a number of problems in access to health care and welfare for people with rare diseases are presented in the text. The paper presents a set of recommendations for solving the problem of access to services for all citizens.
